Friday, June 24, 2011
My Life with Hidradenitis Suppurativa (HS)
Every since I could remember I had got boils from time to time. I even remember my dad getting them sometimes,and it was no big deal. But for some reason when I turned 30 ALL HELL broke loose! I moved to Texas ready to start a new life and I began to have massive outbreaks of Golf Ball Size boils on my thighs and under my arms. Not knowing what the Heck was going on with me I went to Several Doctors and I have been mis-diagnosed several times and I have even been admitted to the Hospital for a week! I met with an Infectious Disease doctor and he diagnosed me with MRSA which is a staph like Super Bug that is immune to most all anti-biotics. So after several rounds in the last four months of countless antibiotics and IV antibiotics and Low White Blood count I feel like I have been hit by every single car during Rush Hour Traffic. (lol) The medicine makes me weak and lazy and I don't have the energy to get out of bed most days. The Crappy part of all this is I still have to work and earn money!!!!! So imagine that you are sick and have been taking off work for long periods of time for so long that you have used up all your sick leave and have been going No-Pay. I have been supposedly correctly diagnosed and Yay (sarcastically) this disease has NO cure.... less than 1% of the population has HSand therefore this will be a life long battle. Just my Luck!
What Hidradenitis Suppurativa is ???
Hidradenitis Suppurativa (HS) is an uncommon chronic inflammatory skin condition.
It effects inverse areas of the body, top of inner thighs, bottom, genitals, armpits, under the breasts in women and less commonly the stomach, hair line and behind the ears.
The symptoms of Hidradenitis Suppurativa vary greatly, it can be as slight as black heads and pimples or as serious as large draining lesions, growing to the size of golf balls. This is a very painful and depressing disorder.
It has been suggested that HS may not be as rare as believed, but that people are hesitant to come forward through shame and embarrassment. Also the figures are low through lack of accurate diagnosis.
Very little research has been done into Hidradenitis Suppurativa. It is known as an 'orphan' illness, which means, because it is considered rare there are no pharmaceutical companies that have taken up the challenge to find a decent treatment or cure. The question now is why? ( http://www.skincell.org/hidradenitis_suppurativa.shtml)
It effects inverse areas of the body, top of inner thighs, bottom, genitals, armpits, under the breasts in women and less commonly the stomach, hair line and behind the ears.
The symptoms of Hidradenitis Suppurativa vary greatly, it can be as slight as black heads and pimples or as serious as large draining lesions, growing to the size of golf balls. This is a very painful and depressing disorder.
It has been suggested that HS may not be as rare as believed, but that people are hesitant to come forward through shame and embarrassment. Also the figures are low through lack of accurate diagnosis.
Very little research has been done into Hidradenitis Suppurativa. It is known as an 'orphan' illness, which means, because it is considered rare there are no pharmaceutical companies that have taken up the challenge to find a decent treatment or cure. The question now is why? ( http://www.skincell.org/hidradenitis_suppurativa.shtml)
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